This month’s top 5 questions are answered…

This month’s top 5 questions are answered…

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Question 1: My relative has dementia.  Do they automatically qualify for NHS Continuing Healthcare Funding?

No.  There is no automatic right to CHC Funding prescribed within the NHS National Framework.  Each case depends on its own merits.

Although many people who suffer with dementia do qualify for CHC Funding, dementia alone is not a guaranteed ‘win’ on its own.  If therefore you are told that your relative will win their case without providing a detailed account of their care needs, be very cautious.  Determination of eligibility is not based on a condition, or label, but by reference to the patient’s health needs, when considered in conjunction with the four key indicators (or ‘characteristics’), namely nature, intensity, complexity and unpredictability of their needs.  There can be many people with the same diagnosis (e.g. dementia) but who all have differing levels of care needs.  Some of those needs may be the type that could be provided by Social Services e.g. support and friendship; whereas other needs may be more intense, especially when coupled with other medical conditions as set out in the twelve Care Domains (eg breathing, mobility, nutrition, behaviour and cognition etc to name a few…)

Question 2: What happens if I don’t qualify for NHS Continuing Healthcare Funding?

If you do not qualify for NHS Continuing Healthcare Funding then you will need to undergo a financial assessment by the Local Authority to determine, what, if any, contributions they will make towards the cost of care.

Your relative’s finances will therefore be ‘means’ tested, and if they have assets or savings over the current £23,250 threshold, then your relative will have to pay towards the cost of their care until such time as the money runs down below this figure.

The cost of care can therefore be hugely expensive, eating into life-savings and sometimes forcing the sale of an asset – usually the house – to pay for care.

But, if your relative’s health needs change (ie deteriorate) then consider a re-assessment for NHS Continuing Healthcare Funding as this could potentially save many thousands of pounds in care fees being paid out of private funds if your relative’s health needs now meet the eligibility criteria.

Remember, it is worth re-visiting this question periodically even if the individual concerned does not qualify for CHC Funding initially.

Question 3: I have been told that my relative has to be at ‘death’s’ door to qualify for NHS Continuing Healthcare Funding – is that correct?

No, this is a myth and utter nonsense.

You can be assessed for NHS Continuing Healthcare Funding at any stage of life if you have ‘healthcare’ needs – and not just when the individual is at an end of life phase. So don’t be fobbed off. Push for an assessment if you think it is appropriate.

What’s more, your relative may be entitled to NHS Continuing Healthcare Funding whether they are living in their own home, a care home or a nursing home. The setting where the care is needed is actually irrelevant.

Fundamentally, is it the healthcare needs that are the paramount consideration when determining eligibility for CHC Funding.

There is, however, a process available for fast-tracking individuals for assessment of funding who have a rapidly deteriorating condition and may be entering an end of life situation – using the Fast Track Pathway Tool.  See paragraphs 217 to 245 of the National Framework for NHS Continuing Healthcare Funding and NHS-funded Nursing Care (revised 2018). It is quite common to receive funded care for the terminal phases of life, when the individual’s health needs can be acute.

However, generally speaking, in a high percentage of cases we hear about, CHC funding is awarded (or at least should be awarded) well before the terminal phase, and indeed, some people qualify for CHC funding once going into a care/nursing home environment and go on to receive funding for 12 months or even longer.

Question 4: Is there a legal way to avoid paying care home fees?

Potentially, you can protect your assets and put them into trust so as to reduce your capital below the £23,250 threshold when being means-tested for Local Authority Funding.  You can put your assets into a protective trust – but beware! The Local Authority can view these arrangements as a deliberate attempt to carry out anti-avoidance measures, otherwise known as ‘depravation of capital’.

If the trust or gift of your relative’s home is made within six months of entering into residential care, the Local Authority can still render their charges, and treat your relative as owning that asset, even if they have gifted it away.

This is a complex legal area and we can offer no guidance here, save to say that if you take the correct financial and legal advice far enough in advance of needing to go into care, then you could potentially avoid paying the cost of the care, regardless of whether or not you are eligible for NHS Continuing Healthcare Funding.

By the time most people going into care realise that their wealth could be means tested and want to take protective measures, it is often far too late to take advantage of legal trusts to protect assets from means testing. However, children looking at their parent’s savings being swallowed up to pay for care should realise the importance of not creating the same mistake and planning ahead before old age.

This is an area where we suggest that you do seek professional legal help to see if you are able to legally protect your /your relative’s assets before it is too late.

Question 5: I have had a Checklist assessment and told that I have got too many ‘high’ scores.  The assessor wants to downgrade some of the scores – can she do it?

Absolutely not!

This is OUTRAGEOUS and totally unacceptable!

The scoring across the 11 Care Domains is supposed to give an indication as to the level of need within each heading. The care domains are as follows:

  1. Breathing*
  2. Nutrition – food and drink
  3. Continence
  4. Skin integrity (including tissue viability)
  5. Mobility
  6. Communication
  7. Psychological/emotional needs
  8. Cognition
  9. Behaviour*
  10. Drugs/medication/symptom control*
  11. Altered states of consciousness *

On the Checklist form you’ll notice that each domain has three categories of need: A, B and C.  A is for high needs, B is somewhere in the middle and C represents relatively low needs.

In order for the CCG to consider doing a comprehensive full assessment (Decision Support Tool), you have to have a minimum ‘score’ in the Checklist:

  • 2 or more ‘A’s
  • 5 or more ‘B’s (or it could be an A and 4 Bs)
  • or at least 1 A in a domain with an asterisk*

So, to deliberately try and downgrade scores in order to tow the CCG’s ‘party line’ or with a view to preventing funding or for ‘financial safeguarding’ purposes – is frankly scandalous.

The scores should be accurately recorded and not downgraded.  If anything, in the event of doubt, it is arguable the higher score ought to be applied. That is the whole point of the assessment process – which should be done fairly and robustly.

If this has happened to you, you must lodge a complaint immediately with the CCG at the highest level.

Share your questions with us and help others…

If you have any burning questions or tips that you would like to share to help others going through the Continuing Healthcare assessment process, add your comments below.


  1. Suzanne Buckner 1 year ago

    My mother was refused all help she had a stroke and is paralysed down with one side. She has no cognitive ability according to the NHS to make decisions and needs 2 carers at least twice a day to move her – by hoist- in and out of the wheelchair etc. How can this be social care and not medical ? She needs everything done for her etc

  2. Angela Stagg 1 year ago

    Constant unfair stories when it comes to Dementia. My husband lost his CHC as supposedly no longer met the criteria as I literally watch him fade away body and mind. I requested another assessment and was told it will only be a Health needs assessment not a decision tool one. This done on the 14th June. Still awaiting an answer to the outcome. Please Boris sort this injustice to all those affected by this terrible disease. Classed as Social to pass the buck from the NHS to hard hit councils and ourselves.

    • Care to be Different 1 year ago

      Hi Angela – so sorry to hear this. If you would like to chat it through with us please do get in touch. Kind regards 0161 979 0430

  3. David Jukes 1 year ago

    Hi Jane,
    If I understand your reply to Carol Langstaff above correctly, you are saying that anyone diagnosed with dementia and unable to adequately care for themselves should qualify for CHC funding. My wife’s father was diagnosed with vascular dementia 7 years ago and has been in a dementia//nursing care home for 9 months now with fees of over £4000 per month. They did the preliminary checklist process and determined he has no primary healthcare needs and is thus “self-funding”.- this despite ongoing treatment for Prostate cancer and nursing care following the removal of a large melanoma from his head (he gets FNC but this does NOT reduce his monthly fees ??).
    Is it worth pushing for another assessment, possibly with some legal representation??

    • Care to be Different 1 year ago

      Hi David – many thanks for your comments. It is certainly worth looking into. Contact us via Kind regards

    • Care to be Different 1 year ago

      Hi David – yes it is certainly worth considering. Contact 0161 272 5222 Kind regards

  4. CAROL LANGSTAFF 2 years ago

    Two years ago my Mum, who was suffering with vascular dementia and still is , developed a grade 4 pressure sore whilst living in a care home. She was awarded CHC and was subsequently moved to a nursing home. She is totally reliant on support for everything. She is only allowed to be out of bed approx. two hours every alternate day as her waterflow score is 25.Only last week she has been reviewed for CHC for a second time and was found not eligible for the funding. Because she has some savings we realize she will have to self fund but she cannot afford to stay in the nursing home so she will have to move. We have also been told that Mum will have to pay for transport to be moved. Also whilst Mum has been receiving nursing care we have had to pay a top up fee classed as a lifestyle fee. This is for the view, a car park with a vent spewing out cooking smells and the ensuite. Mum is doubly incontinent, immobile and so unable to access the ensuite and scored severe for cognition so is unable to determine who or where she is. So a room with a view is not beneficial at all. In the continuing health care review she received 1 severe with 2 high needs and 3 moderate needs. The psychological and emotional domains were scored as no needs and nutrition as low needs. The results are she has no primary healthcare needs Where is the justice in all this??? Where do I go from here to get the care Mum so rightly deserves. .

    • Care to be Different 2 years ago

      Hi Carol – this is awful but not untypical I’m afraid. Contact us if you would like to discuss this via Kind regards

  5. Jane Stack 2 years ago

    If a person has been diagnosed with dementia, then, legally speaking, they are absolutely entitled to NHS funded health care. The term CHC is not recognized legally, its another made up term!

    A person with dementia should never be denied care in the first place because, in law anyone with an injury, illness or disability to a degree where they cant meet their own care needs, is by law, entitled to NHS care. This is what we have already paid for in our taxes afterall.

    The assessment criteria the NHS dreamed up and use was described by Lord Wolfe in Coughlan as ‘fatally flawed” This assessment tool they use is not recognised in law in any case, its only recognised within the NHS and they have changed it over the years to suit themselves. The NHS have made their assessment criteria so that most people fail to qualify for what they call CHC.

    Booting a person with dementia off the NHS care system is illegal and it is fraudulent to tell then they no longer qualify for NHS care and then push them into the arms of social services.

    Social services can only act within the law themselves and they operate under the National assistance Act. This means they can only provide care which is ancillary to the need for accommodation.

    its a shame people are not properly informed.

    • Dianne Taylor 1 year ago

      Hi Jane,
      I have my CHC meeting is tomorrow 8/5/19 and would love to know on what basis you have made these comments?
      I don,t doubt you in anyway but if I am to use this at my meeting tomorrow, I would like the “ back up” knowledge of quantifying these.
      Many thanks

  6. Jann 2 years ago

    If my mother goes into a care home from hospital to wait for her CHC assessment, and is found ineligible…who is liable to pay for her time in the care home up til the decision?

    • Suzanne 2 years ago

      The local authority will pay for the care I believe until the assesssmemt is done x

  7. Carole 2 years ago

    Hi , I am preparing for a meeting with CCG to discuss my mother’s Needs — in a retrospective continuing healthcare claim .
    The Needs Portrayal Document they have sent me , about her time in Residential Care with Vascular Dementia has parts of her records missing , with the clear evidence of psychosis , and many episodes we witnessed , unavailable . My solicitor has provided them now , as clearly in Records from Care Home ? We meet CCG on Monday next . Is this Fraudulent or illegal ? What next please? . CCG stated no evidence of psychosis in their version. It was obvious to all . Please help . Mum sadly , has passed away , 2014 this has taken 4 years it – beggars belief !! Please help .

  8. Paul 2 years ago

    We are so glad we purchased the ebook. My poor mum has dementia, severe osteoporosis and now hip fracture and in hospital. The discharge worker launched into the self funding spiel and we stuck to our guns about the CHC assessment being an entitlement before the discharge process started. After escalating through the hospital complaints we are due to have a proper assessment meeting this week. Does my poor mum have to reman in the hospital or should she be offered a placement while they decide? Unfortunately it is not possible for her to return home as my father has a terminal illness and will shortly be going into care himself. Any advice welcome

  9. Rita Wickens 2 years ago

    Is it right for a member of the CCG to refuse funding between discharge and a checklist saying the national framework is only guidelines and we don’t do that.

  10. Gillian Pearson 2 years ago

    If I complain to NHS England that the authorities are not following the guidelines – what difference will it make? How do I complain? At what stage is it best to complain? Is the process the same for current and retrospective claims. ? What happens as a result of a claim – is anyone in the process censured or penalised? Can the authorities choose to ignore medical conditions and events prior to entering 24/7 care.? Are the people carrying out completion of DSTs etc being managed/ set objectives to deny/prevent people rightfully haveing care paid for by the NHS? Has anyone been a whistleblower or gone undercover? Which geographical authorities are the worst? What are people’s experience of the outsourcing agencies eg exam works?

    • Care to be Different 2 years ago

      Hi Gillian – many thanks for your comment. The issues which you raise are widespread. Please feel free to contact us for some initial free advice on this. Kind regards

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