What Our Readers Are Saying

 

“It is over 7 years since I found out about Care To Be Different when my Mum had a catastrophic (and ultimately undiagnosed) brain trauma which overnight changed her from being a healthy and fit 83 year old to someone needing the highest levels of nursing home care. Sadly Mum died last month after confounding all of the experts for over 7 years. I to say thank you to CTBD as this site and the ebook prepared me for the trauma of dealing with “the authorities” and therefore allowed me to be very aware of Mum’s rights and how to answer the awful questions that are asked in the assessment. Initially Mum’s care was fully funded but ultimately the powers that be assessed her condition to have improved so for the majority of the last 7 years she had only limited funding. However, the breathing space that my knowledge of the process and being able to initially secure full funding enabled me to come up with a funding strategy (Lifetime Care Annuity) that we were lucky enough to be able to afford through the house sale, and which more than paid for itself; firstly due to Mum’s unbelievable will to live in surviving beyond the estimates of the actuaries, but just as importantly because of the peace of mind the family has had in not needing to worry about carehome fees. I hope this message is helpful to anyone at the start of the journey and that the advise provided by CTBD is just as helpful to them as it was to me (and of course my Mum).” – Neil P

“I honestly cant thank you enough! Reading the website gave us the knowledge that our late mother, who, after following an NHS blunder, suffered a severe stroke and was left with severe brain damage and unable to speak – she was actually refused CHC! This website gave us the confidence to appeal their decision and the knowledge to work through each decision tool, and give solid reasons how she met the criteria. We even questioned how many assessments one of the decision makers had done (which turned out to be just one, a few years ago!) Once they knew we “knew our stuff” , they upheld our appeal, awarded CHC to Mum and the family home that had been owned by our parents for 60 years was saved from being swallowed up in nursing home fees. We would never have done this without you. Thank you from the bottom of our hearts.” – Louise C

“Fight for your rights! After 4 years of CHC funding my husband was told he was no longer eligible. We went to an IRP panel in the middle of COVID all done via a linked phone interview with 6 people involved. We had 500 pages of case notes to work through but with grit, determination and your ‘How to get the NHS to pay’ book we won the case. We were 2 hours on the phone & totally exhausted but so happy when we got the result 2 months later! It can be done so don’t give up.” – Diana D

“Always helpful and this site is so knowledgeable re this subject, as Angela went through this shameful process, and passed on her experiences to a wider audience, which I think most of us now, will be very grateful for.” – Dawn W

“This site is a godsend IF YOU HAVE ELDERLY PARENTS DO NOT DO ANYTHING UNTIL YOU SIGN UP WITH THIS SITE” – Lorraine

“I read your article: 10 Tips About Care Fees You May Not Know! It’s a brilliant read I and I learnt a lot from it. It’s always nice to hear useful information with great research to help others…” – Kay

“Just wanted to say what a helpful website / book you have – thank you so much.” – Louise L

“CHC is the NHS’s ‘best kept secret’ and Care To Be Different, through their excellent website and supportive Face Book page provide the tools to help families unlock this. Having a sound knowledge of the ‘system’ certainly helped me to secure full CHC funding for my mother following a second eligible assessment in September 2019. Recently, after a 2 1/2 year battle, her first completely flawed ineligible assessment was overturned at IRP. ” – Anne H

“Website is a wonderful source of information and has helped us so much.” – Lorraine F

“Thank you Care To Be Different for this website and all the invaluable information it contains.” – Diana

“The information that they provide is factual, helpful and easy to understand. It also clearly helps people understand the National Framework and the case law that applies in deciding whether someone is eligible for CHC funding or not. I thoroughly recommend reading through the main page and working through the links one at a time; all helpful. It can seem rather daunting to start with as there is so much information to take in. However if you read a few small sections, rather than trying to take in the whole lot, it may help. I also feel that their excellent ‘book’ is well worth buying and working through, one step at a time. Good luck and hope this helps. I should add that I am not linked to ‘Care to Be Different’ in any way; I came across them by chance a few years ago and their approach seemed refreshingly straightforward to me. It definitely helped me with a knowledge of the system and how it works (or doesn’t work, or may be incorrectly applied, etc!).” – Kim H

“I am writing to thank you for your work on this website. The information has been invaluable and it is well worth paying for the booklet you have produced. It has taken 2 years after my mother’s death for the CCG to decide that their original decision was wrong and that my mother should have received full funding.” – Susan K

“I eventually secured CHC for [my] relative during their lifetime and recovered unassessed periods of care plus expenses retrospectively… I secured CHC and a Review alone, but it’s essential to be very well prepared and informed. The book and this site were invaluable. I had help with the retrospective case from a specialist who was recommended on this site years ago. She helped me with process, specialist areas of law and drafting, and she was an immense source of informed support. I have a background in law and a tenacious nature. It’s difficult to imagine how anyone can get through the whole process this alone.” – Jenny

“This site is excellent for the information on absolutely every aspect of the process, with genuine folk who like me feel that their loved one has been wrongly denied funding.” – MW

“Gives great advice very helpful” – Ayse K

“Yesterday I received notification that my CHC application for my relative has been successful. I bought and studied your excellent book before the MDT. Without this, I am sure the outcome would have been different. It was invaluable, many thanks.” – Julia C

“Concise, clear information when you need it the most.” – Ruth H

“Bless this group in their work.” – Susan E

“Offers support and a chance for people to share experiences, advice or generally let off steam when needed” – Christine T

“Helpful advice about the care system, CHC, social care etc., Highlighting how common it is to be treated so badly by the system. Some of the stories are heartbreaking and very close to home.” – Sue M

“A wealth of knowledge for people who are all going through the same journey” – Sharon C

Yet another excellent article from CTBD. Thank you! Without this website I would have struggled for information and support during the appeal process for my late father.” – Michelle W

“Yes you give great advice” – Denise W

“Excellent and clear article, thank you.” – Jenny

“Care to be Different have provided a wonderful platform from which to highlight the problems that people are facing.” – Diane A

“A tremendously well written account of the process that a person needs to engage in to grapple-wrestle with both-either simultaneously or separately the LA & the NHS.” – Brian H

“A great source of information” – Barbara S

“Just going through the process for CHC for my mother in law, its been a No twice, came to this site which has given me hope, inspiration and ideas how to do and say things. We are going all the way. We cannot let this happen to our elderly, we must fight for their NHS.” – Jayne B

“Essential support for anyone entering the Kafkaesque world of Continuing HealthCare applications or appeals” – Paul S

“Its a fantastic source of support and information” – Suzanne M

“I was informed about the ‘system’ and how it works by just coming across this website by chance. Never knew there was financial support for care. Thought one had to use their savings or sell their home to finance care. Definitely a minefield, but be prepared to fight for what we are legally entitled to. Also in some cases can go on for months, even years but the support is all here in this website, was invaluable!” – Yvonne C

“Care to be Different should be advertised as widely as possible – I feel – for their informal, accurate, helpful and encouraging advice. Their resources are invaluable to anyone in need of proper advice regarding NHS Continuing healthcare funding and the myriad of legalities and obligations. Their reference guide is excellent (as are their many website posts on the various relevant subjects).” – Kim H

“Very informative. Investigating all aspects of care can be overwhelming and articles like this really do provide valuable clarity, enabling individuals, and anyone requiring care, to consider what situation is best for them.” – Camille L

“Following a very careful read of all the excellent information provided by this website…” – Adrienne H

“I would not have had the strength or confidence to continue my fight on behalf of my late Mum without this web site, the information I have gained here is invaluable. Thank you so much CTBD.” – SAL

“The shared experience and advice is invaluable. So many of us in the same boat but able to learn from each other and feel stronger for the support.” – Lisa K

“Very helpful information on a range of issues and easy to navigate through the complexities of continuing funding” – Tony B

“Straightforward advice to help see through the complex maze of CHC. Friendly advisors and initial 1:1 support is free. This support was enough to ensure I knew what to do so we didn’t need to go to the next stage of paying.” – Anne T

“A wealth of knowledge for people who are all going through the same journey” – Sharon C

“Invaluable information about the right to be cared for upon leaving hospital” – Chris M

“Invaluable information and full of supportive people in similar situations giving much needed advice.” – Claire I

“This page was a lifesaver for us” – Tracey B

“Great site, make you feel part of a family – no one is alone as we have all been through some very testing times” – Marisa T

“Thank you for the expert advice on your website and in particular your publication “How to get the NHS to pay for care”. CHC is a difficult process to navigate and a well guarded secret but with your resources and many hours of study it can be achieved. Nervous for the 3 month review but taking one day at a time, it’s a marathon not a sprint that’s for sure ???” – Julie C‎

“Another helpful and practical article. Thank you.” – Jenny

“I was lost, confused, in shock. When my mum’s mind just seemed to snap one day and her Dementia went from trouble with her memory ,to something I was not expecting or prepared for. Then on top people I did not know started talking about money funding etc… I was lost in a sea of abbreviation, medical words and jargon. I came across Care To Be Different and the more I read, the more I understood what was going on. I felt relief and things became much clearer. The battle I had to fight with people I thought where supposed to be on the side of my mum and Care To Be Different has given me the confidence to do that. Knowledge is power has never been so apt.” – Susan M

“Very good advice and the best place to look for any info on CHC” – Pat H

“Great website, full of important information” – Pauline A

“I was just called back by such a helpful gentleman today. He took lots of time with me to understand the situation and gave me free, really honest and frank advice. Rather than charge me for the nurses assessment, which he could easily have done, he said his hunch was that we wouldn’t qualify. He gave me advice for how to handle the situation going forward and said I could come back at any time if things get worse. I was really touched and impressed with his honesty and kindness. I have spoken to another company some time ago who were very eager for me to pay a large flat fee there and then. This was a much more measured and frank conversation. I’ll definitely be going back to them if things get any worse, which undoubtedly they will. The CHC application process is horrendous and stressful, I really feel this is the way to take the stress away and have an honest advocate that knows what they are talking about help you every step of the way for a service that I thought was very well priced.” – Jocelyn

“Amazing, supportive source of information” – Jo M

“Such a useful source of information and support, thank you. It makes such a difference to be able to discuss and share thoughts and experiences as we each travel on our journey through the care system.” – Lynette T

“The only information that is readily available from people who have been or going through this unfortunate turmoil.” – John W

“This is such a helpful article with excellent support information that I know so many people will find of great benefit.” – Camille L

”Good Luck to everyone and keep up the good work Care to be Different!” – Michelle W

“A fantastic resource for CHC funding” – Chantal R

“Been an absolute life line. Super informative and great support from everyone involved xxx” – Janet W

“A forum where people struggling to claim their or their relatives’ legal entitlement to health care are supported and advised.” – Rebecca F

“This site is worth its weight in gold. I have learnt so much about the legislation of CHC since joining. Without this information I would not have had such a strong case. Also the ebook, how to get NHS to pay for care, is well worth the money. Thank you Care to be different.” – Isobel W

“I will share my story with CTBD once I have concluded this final part of this 3 year battle I have had with my CHC/CCG.
Had it not been for this website and the excellent articles and the experience of other readers I would not have been as well informed and battle ready for the war I have had with my CHC/CCG for the last 3 years. My dear dad died last year, so this victory is bittersweet as the family grieves for a much loved husband, father and grandfather. In time I want to help others who are just starting out on this horrendous journey, but just need time to readjust to a normal life that does not include spending every waking hour thinking about the national framework for NHS CHC and the next Appeal!” – Michelle

“Information to take you from start to finish…” – Paul W

“I bought this online yesterday and thanks to its excellent advice have just won my husband’s appeal.” – Louise

“I’ve bought and downloaded your guide this morning, it’s a great help.” – Debra G

”This is an excellent piece, which I have found useful as I prepare to attend my late father’s IRP.” – Michelle

“Wonderful information all in one place, best help ever for anyone.” – Paul W

“My relative had the MDT meeting yesterday. I am her POA and representative. Due to her advanced dementia, she did not attend. I did. I had ordered the Care to be Different book, and spent two weeks studying it so I was word perfect. As advised, I collated every bit of evidence relevant to the claim. The book is worth its weight in gold. Easy to read and full of clearly written information. It added enormously to my confidence in the MDT meeting. I could argue my case, backed by the information I gained from the book…I thoroughly recommend the Care to be Different book, as you need all the information you can get, and you will certainly find it therein.” – Chris

“A forum where people struggling to claim their or their relatives’ legal entitlement to health care are supported and advised.” – Rebecca F

“Love your website.” – Kathy S

“We are so glad we purchased the ebook…” – Paul

We reserve the right to pseudonymise names for confidentiality purposes.

Care To Be Different, The Copper Room, Deva City Office Park, Trinity Way, Salford, England, M3 7BG.

Care To Be Different is a trading name of Continuing Care Solutions Ltd, Registered no. 09939723.

All content on the Care To Be Different website is copyright Continuing Care Solutions Ltd.