How ill do you have to be to get NHS Continuing Healthcare funding?

How ill do you have to be to get NHS Continuing Healthcare funding?

How ill do you have to be to get NHS Continuing Healthcare funding?Do you have to have complex needs to get NHS Continuing Healthcare?

No. 10 in our series of 27 tips on NHS Continuing Healthcare…

How ill do you have to be to get NHS Continuing Healthcare funding is a question many families ask – and often out of exasperation during the NHS Continuing Healthcare assessment process.

Some of the information about NHS Continuing Healthcare on the internet and elsewhere can be misleading, and may lead you to assume your relative won’t be eligible for NHS funding.

Much of this information leads people to believe they always have to pay for their care if they have savings – which is incorrect.

But another issue that frequently crops up is the way that a person’s health is described.

For example, in answering the question how ill do you have to be to get NHS Continuing Healthcare funding, many websites and guides state that you have to have “complex medical needs” or that you need to be “seriously ill”.

You don’t.

Those statements imply that you have to be in a critical condition or perhaps at end of life or at the very least under the care of umpteen consultants.

You don’t.

What’s more, your care needs don’t always have to be highly complex.

So if you’re asking how ill do you have to be to get NHS Continuing Healthcare funding, remember 3 things only:

Explore more misleading statements about NHS Continuing Healthcare

Tip no. 9: Is it worth appealing flaws in the NHS Continuing Healthcare process?

Tip no. 11: Should you agree to a means test for care fees?

You don’t have to fight this battle alone

Fighting a Continuing Healthcare funding battle alone can feel daunting. If you need to talk to someone about your case, read more here.

3 Comments

  1. san 1 month ago

    Thank you Gary for sharing this. I am currently in appeal process, awaiting date for the Independent Review Panel. My Mum has had 2 Decision Support Tools (DSTs) within the last 8 months. She has been Fast Tracked twice in the last 2 years, has deteriorated further, has a terminal illness and many health conditions. The first DST was ‘lost’. We then had a second DST performed. This was so highly flawed. – just nurse Assessor- (who had never met my mum before), my Mum and myself. Assessor had no previous DSTs or any notes whatsoever, no medical notes, failed to go through each domain, would not accept any underlying needs which are now managed because my Mum is in a nursing home receiving 24 hour care. She played down all health needs. The Multidisciplinary Team panel – nurse assessor and social worker (who had never met my mum before) then met a few weeks later. I was not allowed to attend! Needless to say as a result my Mum no longer has a ‘Primary healthcare need’. I have been to the Resolution meeting – that too was highly flawed in many areas. Same decision. I don’t know if it will change the result by carrying on to appeal, but I will put up as big a ‘fight’ as I am able. This site and the brilliant Angela Sherman’s ebook have been so very helpful – inspirational- My go to fountain of knowledge and helpfulness. I wouldn’t have even got this far without them. I am very lucky to have both My Mum’s GP and Head Nurse of nursing home backing me up. They have both written letters of support for my mum. It is incredibly draining to be dealing with all of this as well as looking after a very poorly relative. Good Luck to everyone – Let’s keep fighting!!!

    • Author
      Angela Sherman 1 month ago

      Thank you so much, San, for your lovely feedback on the website and the book. That’s really kind of you, and I’m so glad they’re helpful.

  2. Gary 1 month ago

    I’m sharing our story with others to demonstrate just how blatantly some CCG’s disregard the National Framework. From the outset of our mum’s recent Decision Support Tool (DST) assessment we knew the NHS Continuing Healthcare (CHC) nurse was determined to downplay each of our mother’s needs. For example disagreeing with us that chronic urinary tract infections couldn’t be related to mum’s double incontinence. Sitting in faeces or wet knickers absolutely can cause UTI’s and as a registered nurse myself I was pretty angry that a nursing colleague could be so willfully obstructive but then again we knew she was only doing what she was told to do which is to downplay needs at every opportunity. So we turned our attention onto the local authority representative, constantly asking if she thought mum’s needs were purely social care or not and sure enough on one of the domains the lady put her hands up and said it wasn’t something they could legally be responsible for. The CHC nurse was rattled by this but we insisted she document everything. A few weeks later the DST decision came back and despite documentary evidence that mum has a need beyond which the local authority can legally provide, the CCG refused to grant funding. When faced with this sort of deliberate obstructionism no wonder so many people are frustrated. We’re now going through the Local Resolution process. Unlikely to change the outcome but nonetheless we’re committed to carry on through the appeal process until it can be heard by others not working for this morally bankrupt CCG. Motto of the story – be prepared for the CHC nurse assessor to downplay needs so dig up some clinical evidence (NICE Guidance is useful). Put the local authority rep in the spotlight – can they legally meet needs or not? Insist, and I mean insist that everything is documented and finally – get some help and don’t give up.

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