Quick tip – find what you need in Continuing Healthcare guidelines

Quick tip – find what you need in Continuing Healthcare guidelines

Quick tip - find what you need in Continuing Healthcare guidelines

Are you looking for a specific paragraph in one of the Continuing Healthcare guidance or assessment documents?

We’re often asked if we can provide specific page and paragraph references from the various Continuing Healthcare guidance documents, to help families pull together a case for funding.

The main guidelines for NHS Continuing Healthcare are in the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care.

Make sure you read this document. The more familiar you are with them, the better your chances of succeeding in an NHS Continuing Healthcare assessment or appeal.

Make sure you also read the main assessment ‘tools’ – the Decision Support Tool, the Checklist and the Fast Track Pathway Tool.  There’s no shortcut in that respect.

Even if you have someone acting for you (e.g. a solicitor or specialist advisor), it’s still a very good idea to be familiar with the guidelines and the assessment tools yourself – because few people know your relative like you do. Your input in any funding case is vital.

You’ll find links to the NHS Contining Healthcare guidelines and assessment tools here.

However, even once you’ve read these documents, it’s still useful to be able to pull out specific paragraphs quickly – whenever you need to – to support your case. It enables you to quote the official guidelines back to any assessor who is giving you incorrect information or failing to follow the proper process.

A quick way to find what you need in Continuing Healthcare guidelines

Everyone has a different level of ability when it comes to using the internet and computers. If you’re not already familiar with the ‘search and find’ function, keep reading…

‘Search and find’ is a very easy way to find specific relevant paragraphs in any document (no matter what the document is) – even if you’re not sure what you’re looking for.

These steps will help you:

Go to the page on the gov.uk website with all of the Continuing Healthcare assessment ‘tools’ and guidance documents.

Now let’s imagine we want to search for something in the National Framework – just as an example.

Click on the link to the National Framework (the first link next to the heading ‘Documents’ on the gov.uk page).

You should now see the National Framework document. Save that document to a convenient place on your computer.

Now open that same document from your computer – from that convenient place where you’ve just saved it.

Search and find box






Notice that in the top right hand corner of the document there’s now a little search box with a small magnifying glass icon. It may look slightly different, depending on the type of document and/or the computer system you’re using – but it’ll look something like in the images here.

Search box on PDF document

Search box in Word document




In that search box you can type any word or phrase you choose. Your computer will then search the whole document and provide you with a list of relevant paragraphs where that word occurs.

It’s really quick – and it means you can more easily and quickly pull together some of the arguments you need to support your Continuing Healthcare case.

Let’s go through an example…

Let’s suppose you’re new to Continuing Healthcare and you’re trying to get to grips with what should happen.

You realise that someone should be coordinating everything but you don’t know how that works. So let’s imagine you want to find out what the Continuing Healthcare coordinator is supposed to be doing.

We’ll search the National Framework for information to help us:

Using the process outlined above, save the National Framework document onto your computer, and then open it from your computer. Type the word ‘coordinator’ into the search box (top right) on your document.

Search and find arrow icons




You will immediately see one of the following:

1. On the left hand side you’ll see a list of about 15 pages where the word ‘coordinator’ occurs. Simply click on each one in turn (on the left  hand side) and, in the main part of the document, you’ll see the corresponding paragraph where the word is mentioned.

Find the paragraphs that support or help you most, and use them to quote the NHS’s own guidance back to them if they fail to have a coordinator in place and/or fail to do things properly.

Simply click on each paragraph in turn and you’ll be taken immediately to that same paragraph in the actual document.

Searching a PDF






2. Alternatively, you might see the word ‘coordinator’ highlighted within the document itself. You’ll also see two ‘arrows’ (one pointing left and one pointing right) next to the actual search box.

Searching a Word document



Search and find arrow icons





Use the right hand arrow to jump to the next highlighted word. (Use the left one to go back.) Use the paragraphs in the same way as in point 1.

Here’s a further example…

Again, we’re using the National Framework document. You can also type phrases into the search box – rather than just one word:

Let’s suppose you’ve been told there needs to be a Best Interests meeting to decide the best course of action for your relative.

You may not know much about Best Interests meetings, and so by going through this ‘search and find’ process, you can very quickly arm yourself with the information you need from any given document.

Go through the same steps as before and type the phrase ‘best interests’ into the search box.

You’ll quickly see 11 page references on the left hand side where the phrase ‘best interests’ is mentioned. (You could also type in the phrase ‘best interest’ (without the final ‘s’)).

You can of course use this process for any document – it doesn’t have to be about Continuing Healthcare! – but it’s particularly useful for pulling information together quickly to support your case.

28 links to help you with NHS Continuing Healthcare funding


  1. Katrina 1 year ago

    Please can you help me. My mother has advanced dementia suffers with seizures and epilepsy for which she is on medication for, has severe cognitive decline cannot communicate verbally, has to be fed and given drinks and is incontinent, and her waterlow score is 24. In the Checklist meeting mum’s nurse had about a week’s worth of records showing that our mum was resistive to care and answered various questions by the NHS nurse assessor on how exactly mum was resistive to care. But the assessor said that there wasn’t enough written evidence regarding mum’s behaviour and could the care home in between the Checklist meeting and the Multidisciplinary Team (MDT) meeting do more daily records of this. Which after much persuasion from myself the care home have done. But imagine my dismay when after reading the daily behaviour charts you wouldn’t believe that it was my mum they were writing about as she had the best behaviour I have ever seen totally contradicting what mum’s nurse had said at the Checklist meeting. I wish now I had never pushed them to write them. Even the events that the carers have verbally informed me and my sister of – for example my mum grabbed a carer by the arm and pinned her to the bed when she was feeding her and she had to stretch to pull the emergency chord for other carers to help her to get my mum to let go of her. We have also been told that mum is becoming more and more aggressive. Which they all deny now. I have written everything the carers have told me verbally into a diary which I have kept for about two months, plus I have two or three videos showing mum being resistive when being fed, lashing out and shouting and grabbing the carers hand but I don’t think the NHS assessor will choose to believe me and my sister. Any advice as to what to say and do for the MDT meeting ?

  2. DENIS CRONIN 1 year ago

    Hi every body / anybody / any advice would be appreciated .
    My local social services have admitted verbally that my mother of 89 years old needs full time care in a care home. I have found a good care home where mom is now which is being funded by moms rapidly depleting savings. The fees are £670 per week. At the start of her going into care 4 months ago moms savings were just above the threshold where state help can happen, but now as you might appreciate moms savings are now well under the threshold. The thing is despite my contacting the relevant department at the council in writing, by phone ( no one answers ) in writing and e mail numerous times all I get is silence ( no replies )! Is this a common occurrence in other parts of the UK? I would be very grateful for any advice on getting them to respond. For example do I need to hire a solicitor etc ? I am very worried. Thank you. Denis Cronin

  3. Jean dawson 2 years ago

    Can someone answer a couple of questions i have?
    Mum as been in care since december she has advanced alzheimers and lung cancer, she is also immobile and doubly incontinent since a stroke 2 years ago.
    Mum as no property and little savings, she has been contributing to her care with her pension topped up by social services/lical funding.
    She had a Continuing Healthcare assessment for full funding this week and the assessor felt confident she would be awarded full funding, however, i forgot to ask a few questions such as if awarded does this mean she will get her pension back and will not have to contribute to her care herself? Also, how long the award process takes?

  4. Lisa 2 years ago

    My mum was taken into hospital following a stroke, after being told interim funding had been agreed, I was given a list of care homes and asked to make decision in 2 days as to which home to choose! My mum has no mental capacity and I was unaware of the minefield I was entering into. I felt pressurised into making a decision by the discharge nurse and knew something was not right but being unfamiliar with the processes went along with their wishes after making my feelings clear to her of course. Cut a long story short and my mum was back in the hospital just 9 days later after the rushed discharge …….now I find myself in the same situation again, 6 weeks later being pressurised and upset and scared that my mum is being discharged too early and in an unsafe manner. I wish I had found this website earlier. Great work and hope this helps more people like me navigate this crazy process at one of the most difficult times in their lives

  5. Victoria 2 years ago

    Our local hospital has just informed us that they have fast tracked our father for Continuing Healthcare (CHC) which has been passed. He does not want to go in to a nursing home and has expressed he want to go home for what time he has left. It seems like a minefield trying to sort everything out. They have told us that if he goes home he is only eligible for 3 calls a day, which in effect will leave him on his own for around 20 hours a day, which would do not think is right. We are looking at adding additional care so he has support 24/7, they say he does not need 24/7 care, though that is what he would receive in a nursing home. We have now, after some serious work, that they will provide £650 per week towards care and we can get a full time CQC registered carer in and we can pay the difference in care – around £500 extra per week. If he had not been fast tracked he would have been self funding. Is this correct or do they have to cover the whole amount of care if he wants to be at home. We are so confused and exhausted with the whole procedure and are still not sure if what we are being told is correct, but want to get him home as soon as we can.

  6. Ann Mason 2 years ago

    Following a Multidisciplinary Team meeting at which levels were agreed for the Decision Support Tool we have received notification that we will not qualify for NHS Continuing Healthcare. The Psychological and Emotional Needs section has been changed by the Nurse Assessor from high which we all agreed at the meeting to moderate. Are they able to do this without family, Social worker and Community Psychiatric Nurse input?

    • Richard 2 years ago

      No it is tantamount to fraud if it was only up to the nurse assessor why bother involving anyone else; it is a multidisciplinary TEAM decsion. my advice is at any future meetings record it it photograph any meeting notes there and then

  7. Kalyan 2 years ago

    Thank you Angela. This is very helpful. I will look at the document again.

  8. Kalyan Dhar 2 years ago

    I have recently attended Decision Support Tool meeting for my wife. We live in Wales. All these information and practical guidance has helped me to prepare for the meeting. The health board has now agreed for Continuing Healthcare (CHC).
    I understand that if some one is eligible for CHC the NHS (Health Board) pays for the nursing home fees in total. However the nursing home manager mentioned that I have also to pay a top up fee for my wife’s care.
    Has any one faced similar problem? Please can you help me.

    • Angela Sherman 2 years ago

      Kalyan – all the information we publish at Care To Be Different relates to the Continuing Healthcare system in England. Although the broad strategies we talk about on our website and in our books will help you prepare for assessments and reviews, there are also some key differences between the two systems (Wales and England), and it’s vital that you have a look at the National Framework for Wales. In England, once CHC has been awarded, no one should be asked for top up payments.

  9. Ann Mason 2 years ago

    Please can you help me, we have had the Decision Support Tool meeting and the notes were taken on a laptop. We asked if we could have a copy of this before it went to the review meeting and were told we would be sent one. We have been told a decision has been deferred while more evidence is collected,so we asked why we had not received a copy and were told we would not get a copy until a decision is made. Surely this cannot be correct as we have no idea what information has been presented to the review team. Can we insist on getting a copy?

    • Angela Sherman 2 years ago

      Ann – yes, insist on a copy. As you say, you have no idea what information has been presented or what might have been changed. You should have the opportunity to comment on the Decision Support Tool notes.

      • Ann Mason 2 years ago

        Many thanks Angela

  10. Jenny 2 years ago

    As ever, great advice and a real time saver. There is no substitute for familiarity with the relevant documents, and his makes the volume less daunting. Thank you.

    • Angela Sherman 2 years ago

      Thank you for your kind words, Jenny.

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