The 7 most outrageous reasons for not receiving an NHS Continuing Care assessment

The 7 most outrageous reasons for not receiving an NHS Continuing Care assessment

Elderly-man-and-his-wife

NHS funding is available to cover 100% of care fees for elderly people with predominantly health needs. This is called NHS Continuing Healthcare. (It’s also called ‘Continuing Care’ or ‘fully-funded nursing care’.) There is an assessment process to go through.

However, many people are not told about this funding, and many families who ask about it on behalf of an elderly relative are simply told they won’t get it – and that there’s no point in doing an assessment.

This is not only completely wrong (because everyone with health needs going into care should be assessed for Continuing Care), but it also puts families off pursuing things further. It means elderly people often wrongly lose their homes and everything they own to pay for care that should be paid for by the NHS.

It is one of the biggest scandals in elderly care in the UK.

At Care To Be Different we hear from many families who’ve been given incorrect information about Continuing Care by the health and social care authorities. That’s why we’re sharing with you the 7 most outrageous reasons we’ve heard to date for elderly people not being assessed. We’ve also included some useful tips about what to say in response…

1. “You won’t get funding because not many people do.”
No one can possibly make a decision about funding until an assessment has been done! If your relative needs to go into a care home, or needs full-time care at home, they should be assessed for NHS Continuing Healthcare ideally at the start, but certainly within three months of starting to receive care. If your relative is in hospital, they should be assessed BEFORE they’re discharged.

2. “We’re not doing an assessment because you won’t qualify.”
Again, no assessor (or care home nurse) can make a judgment about this without doing an assessment. The first assessment is a screening assessment called the Checklist.This determines whether your relative will receive a second full assessment using the Decision Support Tool. Make sure you’re present at every assessment.

3. “To get Continuing Care you have to be about to die.”
The eligibility criteria for Continuing Care look at your ongoing health needs, not how long you have left to live. There’s no limit to the length of time you can receive Continuing Care, and it has nothing to do with how close you are to the end of your life.

4.“There’s no Continuing Care contact here.”
There may not be a Continuing Care contact where your relative is based, but that’s irrelevant. The NHS must arrange for someone to be available to do the assessment.

5. “The care you need is too expensive.”
If your relative’s care needs are primarily health needs, it doesn’t matter what their full-time care costs; the NHS has a legal duty to pay for it, including the costs of accommodation in a care home.

6. “We’re too busy to assess you.”
It doesn’t matter how busy the local NHS Continuing Care Department is – or how busy any other assessor is – your relative should be properly assessed. As your relative’s representative, you also have the right to appeal any decisions you don’t agree with.

And the most outrageous reason we’ve heard so far:

7. “Continuing Care is only for people who can’t swallow.”
A family called us to say that their relative was desperately ill and had significant healthcare needs, but had been told none of that mattered because the elderly person could still swallow. The Continuing Care assessment looks at a range of health needs, from mobility to symptom control, and from cognition to breathing, including those needs arising from dementia. It is not, and never has been, solely about the ability to swallow.

Read our NHS Continuing Healthcare FAQs

7 Comments

  1. Anne smithson 3 years ago

    I have written to Jeremy Hunt about the CHC scandal and the press needs to be aware of this.

    • Angela Sherman 3 years ago

      Let us know if you receive a response, Anne.

  2. Angela 5 years ago

    At this point Simon you may need to take your case to the regional NHS National Commissioning Board – to an Independent Review Panel (IRP). It’s worth checking with the local NHS to see if there are any further Dispute Resolution Meetings that need to be scheduled. If not, ask them for details of the IRP.

    • Andrew Searle 5 years ago

      No, Angela, it is the assessment criteria for NHS Continuing Care that are “outrageous” and “a scandal”. I completely agree with the implications of Simon’s comments. My mother died in April from advanced Parkinson’s, chronic heart disease and 8 other conditions. She was also doubly incontinent, had no mobility, had difficulty eating and was losing her mind. She needed double-handed care while living at home. We were in the process of a 2nd attempt to get CC eligibility when she died. I continued the process as CC can be applied retrospectively for the last 3 months of care but even this was turned down.
      One of the criteria for having a primary health need, according to NHS CC, is that the medical condition should be”unpredictable”. So you can be terminally ill but as long as your condition is “predictable” you are unlikely to have a primary health need….
      It’s no good appealing to the NHS on the basis of such crass criteria. The scheme must be challenged and exposed for the scam that it is!

      • Angela 5 years ago

        Thanks for your comment Andrew. The whole system is flawed and contrived, and designed to stop people accessing the free NHS healthcare available to the rest of the population. The care fees reclaim deadlines imposed last year are equally outrageous, and the Continuing Care assessment frameworks, criteria, processes, etc. are questionable in law. However, families need a way to challenge the outcome of assessments, and the information on our blog and website is designed to help people do that – and it’s good when we hear back from families who have successfully obtained NHS funding by using our information and advice. I agree though that the whole web of Continuing Care assessments, ‘eligibility’ criteria and scores is a scandal in itself.

        • Janet O'Neill 4 years ago

          I am currently trying to get my 95 year old father Fast Tracked for CHC due to his rapidly deteriorating health and being put on the End of Life Pathway by the Doctor with a prognosis of days/weeks to live and has the following

          1 End of Life elderly frail
          2 Type 2 diabetic
          3 Ischemic heart disease
          4 Chronic Kidney Disease Stage 3
          5 Sudden deterioration due to Chest infection
          6 On end of life pathway by Dr. with a prognosis of days/weeks to live
          7 Skin integrity – has pressure sores of varying degrees also needs to be turned regularly i.e. every 2/3 hours
          8 Totally immobile all movements have to be done by carers or hoist cannot even move position in bed himself.
          9 Doubly incontinent
          10 Has nutritional needs cannot feed himself taking minimal amounts of fluids and minimal amounts of pureed food and has lost a lot of weight.
          11 When given fluids carers/myself have to be careful he doesn’t choke has been prescribed thickener by swallow team
          12 On Warfrin due to DVT
          13 Recent history of Altered State of Consciousness
          14 Displaying cognitive impairment with short term memory loss and often disoriented to time etc
          I have been told yesterday that he is not eligible for FAST Track CHC funding – I asked why and was told there was not enough information on the form submitted – I did comment well I suppose he needs to be dead to be considered. – The whole NHS CHC Funding scenario is a complete and utter joke.

  3. Simon Boultwood 5 years ago

    My mother has now been in a care home for 3 years, self funded. She is PEG fed, doubly incontinent, no mobility at all and has virtually no cognition. She is reliant on all her needs by the Care Home workers. She has been refused CC funding twice now as she “does not have a primary health care need and her needs can be met by the nursing staff and care workers”. She receives the NHS nursing care allowance, circa £ 108/ week. Her care home fees are £4100.00/month.

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