Do you need a speaker on NHS Continuing Healthcare?

Angela Sherman, director, Care To Be DifferentIf you’re a legal or financial professional and looking for an expert speaker in relation to NHS care funding and NHS Continuing Healthcare, please get in touch.

Angela Sherman, director of Care To Be Different, speaks at various events and seminars, including those held by the Institute of Financial Planners, various business groups, the Society of Trust and Estate Practitioners, health and social care study days, etc.

As a Continuing Healthcare speaker she can tailor her talks to include any particular angles you need regarding NHS care funding.

The kind of topics she can cover includes:

  • how NHS funding for long term care works
  • why so many people find themselves paying care fees that should, instead, be paid by the NHS
  • the biggest myths about paying for long term care
  • what goes wrong in funding assessments – and why mistakes are often made before an assessment even takes place
  • landmark legal cases – and their implications for your clients
  • why it’s vital for professional advisers to understand the difference between social care and healthcare
  • case studies and real-life scenarios and the key questions to ask your clients in these situations

…plus, of course, specific content for your own particular event

About Angela Sherman

Angela set up Care To Be Different after going through a long and tedious Continuing Healthcare battle with the NHS on behalf of her own parents. She eventually secured full NHS funding for their care right up until they died – plus a retrospective refund of care fees wrongly paid prior to that.

She has since helped many other families do the same. As well as drawing on her own personal experience in this field, she has also been researching this specialist area for nearly 10 years.

Her book, How To Get The NHS To Pay For Care, has also drawn enthusiastic praise from families who have used it to successfully get through Continuing Healthcare assessments.

She is now on a mission to help professional advisers understand why a conversation with clients about NHS Continuing Healthcare is so important – to prevent clients losing everything they have to pay for care that the NHS may have a duty to pay for instead.

Some of the feedback on Angela’s talks:

“Your session at the IFP Conference, from what I can tell, was one of the most talked about breakout sessions we had. Everyone at the session was saying how well you put the detail across, and there were many murmurs from people who wish they’d signed up for the session!”
Alistair Wallace, Gemini Wealth Management

“I enjoyed your speech very much and the things that you had to say were so important and getting the right level of good advice is one of the biggest challenges which people face when they move into care settings.”
Professor Martin Green OBE, Chief Executive, Care England

“What you said and the way you presented yourself were fantastic. What I felt was that the audience in general knew little about what you had to say and were pretty much all able to think of someone it affects now, or may soon. I know I did. I really appreciate your efforts and presence, and feel confident that you have presented yourself as the expert.”
Chris Bowmer CFP, Director, Fortitude Financial Planning Ltd and (then) Chair of the Northamptonshire branch of the Institute of Financial Planning

“Thank you very much for your valuable contribution at yesterday’s study day. Feedback from the delegates has been extremely positive, with many commenting on how much they enjoyed your excellent talk. The personal perspective was very much appreciated and your message was delivered very effectively indeed.”
Wendy Thompson, General Manager Sales & Marketing, PJ Care Ltd

“Thank you for a superb presentation last night. As you will have gathered, it was well received and the interaction throughout showed it was a hot topic. Thank you for helping to make our meeting a success. You are a natural presenter and the ideal person for your role. Cool, calm and collected, amongst many other talents I’m sure. Well done!”
Duncan Hannay-Robertson CFP, Hannay Robertson Ltd and Chair of the Cambridge branch of the Institute of Financial Planning

“We had very good feedback about your presentation. Thank you for making such a positive contribution to our seminar. I am pleased other IFP Branches are asking you to speak and I will certainly continue to sing your praises.”
Kevin Deamer CFP APFS, KMD Private Wealth Management LLP

“Thank you so much for yesterday’s meeting – the feedback was all very positive and your talk was extremely well received.”
Sean Condon, CFP APFS, Yew Tree (Financial Services) Ltd and Chair of the Essex branch of the Institute of Financial Planning

“Many thanks for coming along to speak – we loved having you there and I have had great feedback of how much people felt they had gained from attending.”
Gill West, Adult Resource Centre in Pinner, Middlesex

“I’ve never heard anyone else speak about the topic as clearly as you and I’ve used much of the knowledge I gained from you in the past year.”
Gretchen Betts, Certified Financial Planner and Director at Magenta Financial Planning

What’s in the press about Angela Sherman and Care To Be Different

Contact Angela here to talk about your next event.


  1. pamela 5 months ago

    How long should I expect to wait after my daughter has been successful for NHS Continuing Healthcare funding. She has been living in her own rented home supported by a care provider. they say unless she stays with them they are pulling out on 31st May. however, we want to consider health budget and use our own personal assistant. As its now heading fast towards the end of april, and despite me emailing the CCG continuously, I have not heard anything. Also I am concerned that the amount of money needed to do this will the CCG say it has to be a nursing home. Can I refuse this?

  2. John Garner 12 months ago

    Whats the cost for a speaker. How many people would you require

    • Angela Sherman 12 months ago

      Feel free to use our contact form for all enquiries, John: http://caretobedifferent.co.uk/contact/

      • Alison Russell-Garner 5 months ago

        My father has been in receipt of NHS Continuing Healthcare (CHC) funding since May 2105 – he has complex needs relating to vascular dementia following strokes, epileptic type form, COPD, high risk of falls, diabetes etc. Last November the Health Assessor started his annual appraisal and we heard nothing until last week when a Social Worker (SW) visited. She shared the Health Assessor’s ratings and she had down graded him in almost all of the domains but critically losing severe for Cognition and severe for Drug Therapies (as they can’t manage his INR and his readings are out of range no less than 75% of the time putting him at risk of a stroke or brain bleed of which he has had several due to poor management). The SW referred to the descriptors having changed and she was using a Decision Tool (DST) dated April 2018. Can an assessment that was started in November using the previous DST suddenly be changed to the new DST which appears to be leading to a down grading and loss of funding? My father has a degenerative condition and whilst they accept he is deteriorating they say he no longer qualifies!!! How can he qualify the past two assessments and not now? Interestingly, the nursing home he has been in for the past two and a half years (on a dementia ward with access to 24hr nursing care) say he has the most complex, severe and unpredictable needs of all their residents so if he doesn’t qualify no one is likely to get the funding going forward which could ultimately lead to the closure of this lovely home. Any help would be greatly appreciated.

  3. paul 1 year ago

    Can i also add, when reading the notes on the support tool, compare notes in ‘Emotions’ to notes in ‘Behaviour’ etc. I did this and as an example, a Note in Behaviour that reads “Aggressive and Very verbal today” should also be noted in Emotions but i found they were not in fact i would find no notes for that day in Emotional Needs. My List of examples is long and its up to NHS England now to whether i am right but rest assured if they continue to sing from the same hymn sheet i will seek Legal advice on all my concerns. This system is wrong.

  4. paul 1 year ago

    I have been in dispute with my Local CCG for 5 years but it wasnt until i took over the Claim for Retrospective funding, 3 years ago, that i found out some health issues my Grandad suffered from where ignored by the care home and the care home GP. Health issues such as Depression (Prescription was ignored by Hospital during his stay thus never continued) Pneumoconiosis diagnosed in 1966, never mentioned in breathing, one note details “No Known Respiratory Conditions” CKD Stage 3, diagnosed in 2009 but never referred to, even in dietary notes. My advice to everyone, do not presume the medical “experts” know all there is to know about the health of someone about to enter into a care home. I presumed and because my grandad didn’t get full assessment in Hospital, these issues continued to be ignored.

  5. Paul Finlay 1 year ago

    My wife and I have just finished an hour long telephone conference meeting with [our local Commissioning Support Unit – CSU] retrospective about my late Fathers Continuing Healthcare (CHC). After 5 long years of been passed from pillar to post from different departments because ( in their words) they couldn’t cope with the claims, so passed it on to the CSU) who have been dealing with my Fathers claim for the last 20 months and I have to say what a waste of time and effort.
    My late Fathers claim was put in in August 2012, my Father sadly passed away in May 2015 but the claim was still on going. My Father suffered with vascular dementia and like thousands of other dementia patients did not know where he was,what day it was, who I was, what year it was, he was talking absolute nonsense , etc, etc, I was told by a social worker when he was admitted to hospital and assessed that he would no longer be able to look after himself and could not go back home and he would have to go into a care home for which he paid for himself. He stayed in the care home for 3 1/2 years where he had falls and broke his nose, black eyes, split his head open on several occasions throughout his time at the care home, this was all to do with his mobility which was caused by the dementia, he had to drink from what can only be described as a baby’s beaker and the drinks were jelled down so he could swallow easier, he had to be fed his food by carer’s, hoisted into the bath, etc etc, the list just goes on, but to get to my point about my conference call with the CSU, they told me that the reason they had come to the decision of not paying back my Fathers care home fees back was he didn’t meet the criteria ???????? they do it on a points scoring system and high and low,,, so no matter what questions were asked they would always refer back to the support tool,, so basically any person who has dementia/Alzheimers has to meet their criteria be bed bound and dying before even considering a case. I asked them who went out and accessed my Father, I was told they don’t do that they go on the evidence provided by the Hospital files, doctors files social workers files, so I asked the question to her (as she was a nurse)” so if you are in A & E and a patient comes in with multiple
    injuries how do you access that patient ? do you just go by whats on the paper work or would you have x- rays done,cat scan done, and mri scans done? her answer ” obviously they would be scanned and x-rayed, but this is different we don’t do that we go on documents received “!!!!!!!!! so how can any one determine how a patient is without seeing them and accessing them ? I was told that they are governed by the government process and have to go by that (a point scoring system then). It was a long conference call meeting, and we felt that we were just going round in circles as every time we asked a question she would refer us back to the support tool, and I have to say the needs portrayal file was just glanced through by the CSU, then when I received the Decision Support Tool (DST) from them all they had done was copy extracts from the needs portrayal into the support tool and scored it in their points system,,,,,I could have done that……… My Father like thousands of others fought for our country in WW2 so we could be free, he guarded the Queen at Buckingham Palace, he came out of the army in the 1950s and worked for 33 years without a day off, paid all his taxes and all his national insurance, then ends up paying for his own care when he gets this vile disease called dementia when there are lots of other people with the same disease and no where near as poorly as my Father was yet they get fully funded???
    I don’t want sympathy, and I’m not complaining about the people who do get fully funded because they all deserve to be fully funded in their time of life,, I just don’t get this country anymore, most other countries look after their elderly.
    At the end we were told that she (the nurse) was on our side and thought the whole process was wrong and was leaving her job as she had had enough and knew that the process for people who were claiming care home fees back was totally wrong, but her hands were tied as they have to work to the process and government guide.
    We have been told we can appeal to a panel but they normally uphold the first decision, so whats the point of appealing? I know….. its because claimants probably won’t bother appealing, so then they won’t have to pay out. If you do have a claim ……GOOD LUCK

    • Angela Sherman 1 year ago

      Keep in mind, Paul, that CSUs cannot make funding decisions; only Clinical Commissioning Groups (CCGs) can do that. CCGs often delegate the actual assessment/review/appeal process to a CSU, but the CSU must refer the case back to the CCG for the actual decision.

      • Paul 1 year ago

        Thanks for your reply it is much appreciated. To be honest I have gone past caring now, its to much stress to contend with, after 5 years of fighting for my Father I feel like we are just running into one brick wall after another.
        As for the appeal, I will have to think long and hard about it, the truth is do I really want to sit in front of a panel of 5 or 6 people, go through all the whole thing again, only to be told no! because my Father didn’t score high enough on the support tool?

  6. Stephen 1 year ago

    This may help others in similar circumstances . If you ever make a complaint to Continuing Healthcare (CHC) complaints department , make perfectly clear it is a formal complaint ! Another lesson learned. Thank you.

  7. Stephen 1 year ago

    Been on to NHS England to make formal complaint concerning non compliance with current framework by Continuing Healthcare (CHC) and CCG. They informed me that this complaint was out of their remit. Is this correct? Also I contacted Parliamentary Health Service Ombudsman and got a positive response . Thank you .

  8. Stephen Oneill 1 year ago

    My daughter has severe learning difficulties and autistiic traits. She is 22 and was granted Continuing Healthcare (CHC) funding just over 3 months ago. The journey to get to that stage has been a constant battle. Her needs are long term and she has no mental capacity. My experience as a parent of CHC and the conduct they have shown towards all aspects of care provision has left me appalled. They have not followed their own National Framework and policy’s to the point of nonsensical. I am currently involved with their complaints dept but ready to take it a step further. At the moment they are holding up my daughters Personal Health Budget (PNB) having not allocated the required case management. 3 monthly review overdue and not one person been to see her despite emails highlighting concerns. As you know you are at the front of a continuous learning curve as a parent in this situation, leaves you with no faith or trust in CHC. Is anybody else going through similar. Non conformaties are high, communication nonexistent or evasive. My daughter is beautiful and I love her so much. She should not be treated in this manner.

  9. Marcus Pettman 1 year ago

    Angela Sherman’s talk to the Joint Support Group Carers (Frontotemporal Dementia Support Group) meeting on 26th February 2015 in London was helpful. I am about to face a tribunal – last stage in a process for attendance allowance application – and wonder whether you would be able to give advice (leaflet or otherwise) on what to say or not to say in support of my wife’s Primary Progressive (non-fluent) Aphasia. What is the procedure at the Tribunal? Any help much appreciated, please.

    Or perhaps point me in a direction where advice on help is readily available.

    Many thanks for your time and look forward to your reply.

  10. Jackie Sanders 1 year ago

    My mum has vascular dementia, alzheimer’s, brain tumour, epilepsy, arthritis, diabetes and high blood pressure. She now needs 24/7 care. She owns her own home (less than 100k) We were told by the social worker that the only help we will get is 3hours a day direct payments – thats all. As a family, 2 daughters and 1 son, we were given 4 days to come up with a care rota for my mum because we told them a care home is not an option (mum made us promise never to put her in one). At the moment, she is back in hospital, and when i asked about CHC i was abruptly told “she won’t get it”.
    So I then asked if there is any other help we can get and we were told no, the only other option is a care home and her house will have to be sold to pay for it. None of us have power of attorney as it was too late. My mum is 70yrs old. Is there any way we can get help with her care to keep her at home? I have worked in the care field for over 20yrs but this side of things are new to me and we don’t no what to do. Any information would be of great help. Thank you.

    • Anne Clark 1 year ago

      My Mother has VascDementia, alzheimers, AF heart ,and paraphrenia,. I got no help, but i do have POA, Mother is now in a home and she has to pay for it. Very little help at all from social services. I am an only child, I have had to learn how to proceed , it is hard work. You need to approach your Mums solicitor to obtain her POA, Good luck. Tried to get Nhs funding, no go.

  11. Barbara Hughes 1 year ago

    We are still fighting our case for my late mother to be granted funding.
    Having attended the Independent Review Panel (IRP) last year, they recommended that a retrospective review be carried out, but only for the last 10 days of her life.
    Prior to the appeal hearing the CCG were adamant that she did not meet the criteria at any stage.
    Clearly, they got that wrong.
    We have since attended yet another resolution meeting, which surprise, surprise, has come to nothing.

    They restricted the dates to which they were reviewing and would not take into account anything relating to mum’s health needs and changes in the months prior to her death.

    Everything we produced to back up our case, they rejected.

    When we received the decision, along with the notes taken by them at the meeting, they were yet again factually incorrect.
    I have now obtained mums hospital records for the periods concerned, (they were not sent to me in time for the resolution meeting).
    Information is showing up in these notes, which the CCG knew nothing about, yet they still will not accept that mum should have qualified.
    We tried to get some legal advice from a specialist solicitor, but, they will not advise until we pay the fee up from, which is £1000 plus VAT, and, there just is no money left from mum’s savings etc as by the time she died, we had paid more than £350000 in fees and that wiped out everything she had, we cannot afford to lose this fee, if we were to lose the case.

    It is so wrong, we do not know what to do next.

    Any advice would be very much appreciated

  12. Lesley Speight 2 years ago

    Good Morning,
    My Mum suffers with dementia, she suffers with her speech, Depression, spondylitis, arthritis, crumbling of back vertebrae in lower back and trap nerves and is in permanent pain, she had a fall about 4 weeks which she ended up in hospital for a week and a half. she has come out more confused then before she left, she has carers in at mo, the rehabilitation carers which end on 24/11/16. social services have assessed her and have decided she needs carers in place permanently, 1 hr in morning, 1/2 hr dinner, 1/2 hr tea, 1/2 bedtime.
    i feel my mum needs more than this and structure with the same carer coming and set times and was thinking about a private company who deals with dementia but are alot more expensive and wondered how i go about starting the process of applying for continuing health care to help get the best possible care for my mother at home. All she does all day is sit in a chair in front of the TV, she no longer can use washing machines, microwaves, toasters, the carers havent bathed her since being there, i have twice due to work commitments and family at home and its nearly 3 weeks since her last so hygiene is suffering badly, she has problems dressing and undressing and needs to be encouraged to wash.
    I’m at my wits end now trying to get the best possible care for my mother and becoming very emotional myself.

    • Angela Sherman 2 years ago

      Lesley – your mum should have been assessed for NHS Continuing Healthcare before she was discharged from hospital: http://caretobedifferent.co.uk/paying-for-care-between-hospital-discharge-and-funding-decision/ Have a look at some of the initial links on this page: http://caretobedifferent.co.uk/nhs-continuing-healthcare-funding-28-useful-links/ – they will help you get started.

      • john 2 years ago


        I’ve just had the Decision Support Tool (DST) Multidisciplinary Team (MDT) meeting and, surprise surprise, they recommended that my father who has Alzheimer’s, was not eligible for Continuing Healthcare. Although they did suggest that when he deteriorates further he’ll probably get it! My father who recently was moved to a care home from hospital has Alzheimer’s no mobility (needing a hoist) refusing food, completely disorientated, profoundly deaf, doubly incontinent and has now started to choke when drinking, so a thickener is now being used in his drinks. MDT told me his needs come under “Social care” at the moment but I reminded them that my father has a medical illness (Alzheimer’s) and requires physio even though he’s bed-bound. I also mention the Coughlan case to them but this really was kind of dismissed.
        My question is this. Even though the MDT haven’t recommended my father, is there anything I could included in the end section of the DST that would sway the CCG panel e.g arguing that physio is clearly a health issue (as is Alzheimer”s), that my father’s choking is only going to get worse, and the MDT not really taking into account the Couglan case. Has anybody successfully changed a non-recommendation to an eligible at panel stage?
        Any info would be appreciated

  13. Frank 2 years ago

    Regarding my query above , I have now been advised by the retrospective review team at the Commissioning Support Unit that a family member cannot attend any retrospective appeal or indeed the process prior when the DST was completed (because it’s a retrospective claim). Is this information correct? Thank you

    • Angela Sherman 2 years ago

      Frank – see above.

  14. Frank 2 years ago

    I am currently at the stage of appealing a retrospective claim decision for my late mother. She gained 1 severe, 2 high, 4 moderate, 3 low and 2 no needs for the first period assessed. The question I would like to ask is it normal practice that the review period being dissected into separate claim parts, i.e. In my case 24/11/09 to 31/3/13 (the first period) and a second review period to be assessed 1/4/13 to 14/ 2/ 14, even though my mother did not move care homes and stayed in the same place for both periods. My mother eventually received NHS full continuing healthcare funding from 14/2/14 onward until she passed away in April 2015.

    I believe if the total period 24/11/09 to 14/2/14 was assessed altogether she would have had a greater chance of securing full NHS continuing healthcare. Are you able to advise if the time period can be split up in such a way. Also, in the needs portrayal documents it mentions that my mother passed away in March 2013 (she died in April 2015). Would this be a reason that the first period of assessment is until 31/march/2013 or is that just a coincidence. Thank you in advance.

    • Angela Sherman 2 years ago

      Frank – if your original claim covered the whole period, then the CCG should be looking at this as a single period. They could still decide that your mother was eligible for only part of that time, but the period of the claim itself remains the same. Sadly it is not unusual for glaring errors to appear in reviews and assessments, and getting the date of your mother’s death wrong is a pretty bad one. It also shows a lack of care and consideration towards you. That error could potentially be why they seems confused about the period of care under review. In retrospective cases you should have full sight of the Needs Portrayal document, where all care needs are recorded by year, and it’s vital that you are given the opportunity to see this and challenge any omissions, errors, misleading statements, etc, before a funding decision is made.

  15. debbie 2 years ago

    During a lengthy stay in hospital, in May 2010, my uncle (aged 62, single and resident in rented accommodation) was assessed as fully funded for Continuing Healthcare (CHC) and we were informed that he needed 24hr nursing care and that he could not return home. He remained in hospital from this date and in August 2010 he was further assessed (without the family’s comments or attendance) and found ineligible for future CHC funding; all that had changed was that he could walk with a tripod frame and two carers. On reading the documentation we discovered that during the assessment process, not all his health conditions or the way his conditions affected him were documented and therefore not taken into account.

    With my uncle’s consent, we challenged the ineligibility decision of August 2010. I enlisted the help of the Citizens Advice Bureau who along with myself (I had authority for me to act on his behalf) provided assistance for my uncle and he received Legal Aid. We attended a local resolution panel who also found my uncle ineligible for CHC funding and the CAB assisted to challenge that decision also.

    In February 2012 we finally had a hearing with the Strategic Health Authority who stated that the decision of eligibility made for CHC funding on Aug 2010 was unsound and a new decision be made in a timely manner.
    We continued to chase the NHS for a new CHC assessment whilst my uncle continued to self fund his care home fees only receiving a proportion of assistance from the NHS for their nursing care contribution.
    I also contacted the Ombudsman but the would not get involved until we had an end to the process, therefore, there was nothing they could do.

    In December 2012, following a decline in my uncles health I contacted the Care Quality Commission and a joint investigation was initiated at the care home with the local Safeguarding Unit. Neglect against my uncle was substantiated. Unfortunately as a direct result of the neglect, my uncle sadly passed away in April 2013. The CAB are no longer involved as they were employed by my uncle.

    My mother and her two sisters have power of attorney, and my mother is dealing with this. In July 2014, she submitted a letter of complaint to the CCG explaining all that had happened with my uncle’s situation. I am continuing to deal with the complaint and I received written correspondence from CCG Accountable Officer that they were satisfied that I had authority to act for my uncle and had seen the written consent. I was told the complaint would be dealt with before Jan 2015.

    Following further chasing to the CCG; I received a completed Care Needs Portrayal Document in August 2015 and returned this with an additional 71 pages of cross referenced evidence obtained through Hospital, GP, Social Services and Care Home records within the 28 day time period as allowed.

    The CHC team today are stating that I do not have authority to act for my uncle and they will not be taking the case forward. I have forwarded a copy of my mothers Power of Attorney, however the CCG are not satisfied that my mothers authority is enough. I am at the end on my tether, it has been one fight after another and I am in constant lengthy telephone conversations on a monthly basis with the CCG.

    I now do not know where to go or who to speak to, any advice would be extremely welcome. I have requested from the CCG, a timeline of all the calls and correspondence that we have had to show the length of time that the complaint has taken and have also requested a full breakdown of the reasons why the decision for CHC funding will not be looked at again.

    Also, as the Aug 2010 CHC ineligibility decision has been set aside and the only previous CHC decision dated May 2010 was that he was fully funded for CHC; now CCG have stated that the CHC decision of Aug 2010 will not be looked at again. Should my uncle (or his estate) receive the fully funded CHC as he was previously eligible as per the decision dated May 10?

    • Angela Sherman 2 years ago

      Debbie – a CCG can only overturn an eligibility recommendation in exceptional circumstances, so it seems highly questionable that the 2010 eligibility recommendation in your uncle’s case was overturned. Challenge everything, and use some of the information in this link to help you: http://caretobedifferent.co.uk/can-ccgs-overturn-nhs-continuing-healthcare-eligibility/

    • Debbie 2 years ago

      Just an update – the CCG will not change their minds regarding my signed authority to act following my uncle’s death, even though I had this during his life… I am no longer eligible? So, other than exhume him to ask if he has changed his mind? or gain continuing authority? the family now have to go through the legal system to gain legal authority………It doesn’t seem to matter that had the CHC dealt with the decision of August 2010, ‘in a timely manner’, as recommended by the then Strategic Health Authority in Feb 2012, my uncle would be alive and this would not be an issue.
      It is strange though!!! Following complaint to CCG in July 2014 – In January 2015, I received a Needs Portrayal document and asked to add comments, for which i included an additional 71 pages of evidenced care needs (taken from GP, Hospital & Social Care notes),the letter also advised that a submission was being scheduled and once returned the Needs Portrayal would be sent to panel …. but we have no authority to act …… surely if we have no authority then disclosing this type of personal information to us constitutes a breach of some type of confidentiality rules?

  16. Janice Clark 2 years ago

    I am now at a stage do I continue or not. My mum moved to be nearer myself; she has many health issues, short description – she fell out of a hospital bed breaking her hip, to which we claimed for negligence, and was settled eventually, (she had dementia, a stoma bag, many UTIs etc). When she was ready for release from hospital we were told under no circumstances could she come home. She was in there from February to April 2009. I found her a home and was told she had to pay. She was in this home until she passed away 2013, but I had already started the claim. Now they are still saying she was not under NHS as records show she was not too bad. I have acquired these records, and I so disagree with them. Shall I continue to pursue? Your comments will be helpful..

    • Angela Sherman 2 years ago

      Janice – yes, if you have the will and the energy tho continue, then most definitely challenge anything you disagree with in what the NHS are saying are doing.

  17. Paul 2 years ago

    Thought I’d share my experience of claiming retrospective funding for my grandad (deceased). My grandad went into care in mid 2010 after a five month stay in Hospital. As well as suffering with Dementia, he also had Diabetes Type 2, Essential Hypertension, Spondylosis, depression and Pneumoconiosis (Diagnosed in 1960). While he was in hospital and for a while afterwards I was suffering with depression myself, life as a carer and a working life had took its toll. Due to this, i was not in any state to argue with the NHS that my grandad shouldn’t be funding himself. This was given has the only option open to us. When grandad died and i was in a better place mentally, i started my retrospective claim through a claims company; this came to nothing, with the NHS offering 4 days refund. At this point i went to the Ombudsman, who couldnt start my complaint due to it not being assessed by the CCG. I took my problems to them and it was through this process that i found out, due to a meeting and a more detailed Needs Portrayal document that no one seemed to know Grandad had a Lung Desease or Depression. These seem to have been missed. The medication grandad had started to take for depression in the January of 2010 had stopped after his initial prescription and because it wasnt on his list of repeat medication was never reordered. Because his lung desease wasnt a recent diagnosis, the carehome GP didn’t have a clue about it. In one comment on his health records, the GP is called because grandad was Breathless and weazing, the GP is quoted as saying ” Maybe he is Getting a Cold”. So, my complaint is now back with the Ombudsman and i now feel my grandad’s health issues werent just open to interpretation but were grossly misjudged through medical ignorance. I sure my story isn’t uncommon, so i urge everyone fighting this fight to scrutinise every piece of documentation the NHS use to assess a patient. Lung Desease and Depression aren’t slight conditions and the care home didn’t have a clue.

    • Angela Sherman 2 years ago

      Paul – your experience is sadly not unusual, and your advice to others is very apt. As you say, it’s vital to pick apart every report and every piece of correspondence from the NHS, as so often there are mistakes, omissions and misleading statements. Families also report documentation being altered without a family’s knowledge.

  18. Claire Carter 2 years ago

    I succeeded in achieving CHC funding for my mother in law last year and found your website very helpful in doing so. She was in a major teaching hospital at the time and on a care of the elderly ward, where they did not appear to understand their responsibilities. I and my husband insisted on being present during the checklist assessment despite being told that it was not necessary. I disagreed with several of their domain scores and successfully argued why they were wrong. CHC funding was subsequently agreed. I doubt it would even have got past the checklist stage had I not insisted that it was our right to be there. Mother in law would have liked to have been provided with care at home but we were told that this was not possible. She moved to a nursing home though the CHC staff told us there were only few nursing homes that accepted the level of fees they could pay and we ended up paying a top up ourselves . I know that funding should really have covered all her costs. She was at end of life and needed to be able to leave hospital so we didn’t have time to contest the level of funding.

    • Angela Sherman 2 years ago

      Thanks for your kind feedback on the Care To Be Different website, Claire. I’m glad it’s been helpful. Well done for standing your ground and making sure the assessors took proper note of your mother-in-law’s care needs. Yes, the Continuing Healthcare funding should cover all assessed care needs, not just what the NHS decides to pay. http://caretobedifferent.co.uk/what-should-continuing-healthcare-funding-cover/

  19. Ray McQueen 2 years ago

    I have been trying to get an initial CHC Checklist assessment carried out for my father in law, since mid Jan 2016. We moved him to a new county, owing to travel distances and as such he doesn’t have a ‘local medical history’. The NHS CHC refuse to carry out the assessment, stating it is the responsibility of Social Services. Social Services refuse to carry out the assessment, stating it is the responsibility of the NHS CHC team. They have been ‘fobbing’ me off for 3 months now and quite frankly, don’t seem to give a stuff as long as it’s not their problem. I would be very grateful for any advice you can offer.

    • Angela Sherman 2 years ago

      How frustrating, Ray! Both parties have responsibility. The local authority (Social Services) must refer your father for a Continuing Healthcare assessment if they believe he could in any way be eligible; they must also look at whether his needs fall within or outside their own legal remit for care: http://caretobedifferent.co.uk/nhs-continuing-healthcare-should-social-workers-be-involved/ The NHS is responsible for the actual process, and must start with the Checklist assessment: http://caretobedifferent.co.uk/what-are-the-different-stages-of-nhs-continuing-care-assessment-and-appeal/ The Checklist can be carried out by a health OR social care person. Social Services are wrong to wash their hand of the process, as they have a vital role to play in it – and ditto for the NHS. Before anyone starts being charged for care, the process of deciding who is actually responsible for paying must be carried out – and that is done via the Continuing Healthcare assessment process.

  20. stephanie Beale 3 years ago

    My father has motor neuron disease, he’s 81 and wont make 82. I have asked for CHC but have been told he needs to be sicker! He has lost the use of his legs, can barely talk now and can only has limited use of his arms/hands. He cannot do anything for himself now and, although i have looked after him, i feel he is now to ill for me. Can you suggest anything to speed up his application – he has been put into a emergency respite home at £1000 per week this week, and if continues with this his has about 20 weeks worth of money left.

  21. Kathleen Pickering 3 years ago

    Hi – I have a query. I have never had much of a relationship with my mother and my mother doesn’t like me visiting her much either. Recently she went into hospital because of a fall where she fractured her shoulder. I went to visit her a few times but didn’t let her know I was there. Eventually she was discharged. She cancelled her 6-week aftercare the day she got home. How can the NHS allow that? How can her doctor allow her to cancel the 6-week package arranged by the hospital? I called social services and they said they can’t do anything. I do not have any authority myself to do anything; I do not have power of attorney either. So no idea what to do.

  22. Stephen T 3 years ago

    The Parliamentary and Health Service Ombudsman (PHSO) has upheld the CCG’s rejection of my mother’s retrospective CHC claim, following the fact that she was never assessed for funding when she was alive even though she had a primary healthcare need.
    Their reason for rejection was they never received the supporting documentation which my solicitor sent them, i.e. “it got lost in the post”. I received my copies of the letters. We seem to have reached the end of road with the solicitor, as the next step is barrister-led judicial review, which they are currently exploring.
    What do we do next?

    • Angela Sherman 3 years ago

      That sounds like a thoroughly flawed decision on the part of the Ombudsman, Stephen. The legal route may well be the next step. Be sure to sign up for our information bulletin, as we are about to include a link for people who have approached the Ombudsman with their CHC case.

      • Sue Collins 3 years ago

        Hi Angela, Just read your comment thread regarding your information bulletin that will include a link for people who have approached the ombudsman with CHC cases. I am very interested in this. I have contacted the Ombudsman on two previous occasions regarding my case for CHC funding for my mum. Both times the Ombudsman has said that the CCG have done nothing wrong even though I pointed out that they haven’t followed the guidelines correctly.
        I contacted them again late last year and this time they have come back to me saying that they are investigating my complaint and it may take a while. I have not yet heard back from them so I can only hope that a thorough investigation is taking place this time! It should do as the CCG have behaved appallingly and left me in tears more than once. They totally disgust me how they treat people and even worse that they are getting away with it.

  23. neil salmon 3 years ago

    My father recently passed the NHS Continuing Healthcare Checklist and was moved out of hospital to a Nursing Home under the local council (near to his and my mother’s home) for a temporary period pending outcome of the Full Assessment. I’d like to get advice about how i should proceed, to make sure this gets a fair consideration. What i should do next? Thank you, Neil

  24. Charlotte 3 years ago

    Hello, thank you for the information on your website. My mother-in-law has advanced dementia and is currently in a home. She has had an assessment and has been given one severe, two high and three moderate but was refused Continuing Healthcare. I am appealing as they have not classed her as immobile which clearly she is (bed bound and contracture a for 4 years). They said because they can move her she is not classed as Imobile, do you have any advice on this? Many thanks.

    • Angela Sherman 3 years ago

      They must look at risk – and it seems clear that there are risks associated with your mother-in-law’s immobility (contractors, pressure sores, etc) and, I would imagine pain too perhaps. Also, it doesn’t matter whether or not someone else can move your mother-in-law – it’s your mother-in-law’s own mobility that counts. I’ve heard that excuse before from assessors, and it doesn’t hold water!

      • Janet Chalmers 5 months ago

        My mother has also been refused NHS Continuing Healthcare (CHC) funding – she scored 1 severe for Cognition but the CHC team refused to score severe in mobility. She has vascular dementia is totally immobile, her legs are contracted & in the past has had many TIAs. The care home now nurse her in bed as she can no longer support herself in a chair and she is safer there.

        is there any argument I can use to upgrade this score from high to severe.

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